October 25, 2016 ACCESS TO HEALTHCARE FOR ALL! #WSBHD Today is the 5th World Spina Bifida and Hydrocephalus Day! The aim of the World Spina Bifida and Hydrocephalus Day is to raise awareness and understanding and to advocate and promote the rights of persons with these conditions. Does your association plan to organise some activities… Read More


Obesity is a global health concern. Children and youth with disabilities have high rates of obesity, which can affect both their physical health and quality of life. Children with spina bifida are at higher risk of developing overweight or obesity for a number of reasons, but weight management is not often talked about in spina bifida clinics. … Read More


If you are 18 or older with spina bifida, we want to hear from you! Researchers at Indiana University are interested in learning about your sexual health and experiences with spina bifida. Participate whether or not you ever had sex. It takes only 15-20 minutes!… Read More


3rd Annual Ontario Region Golf Classic – Solidarity Works! Union members and employers came together for the 3rd Annual Unifor Charity Golf Classic held in Milton, Ontario on June 4, 2016. Over the years union members from the former CEP and now Unifor union have raised an astounding $400,000 through golf tournaments held in support of… Read More


SBHAC is very pleased to announce that Dr. Nathalie Auger was the successful applicant to receive funding for her research project on Maternal early life risk factors for neural tube defects in Quebec. … Read More


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The SBHAC’s Mission is to improve the quality of life for all individuals with spina bifida and/or hydrocephalus, and their families through public awareness, education, research and advocacy, and to reduce the incidence of neural tube defects. You can help us by becoming a member of SBHAC today. You will receive our SBHAC newsletter, and… Read More