On World Mental Health Day, October 10, the International Federation for Spina Bifida and Hydrocephalus (IF) called for integrated care for people with complex disabilities. Today, IF joins the celebration of World Mental Health Day by launching our animation “Reclaiming my health”, on the importance of mental health and well-being of people living with complex… Read More


Evan was born September 4, 2007 with Spina Bifida and Hydrocephalus. He had his first surgery when he was only 4 hours old to close the holes in his back. He had his second surgery when he was 10 days old to have his VP shunt put in to help drain the spinal fluid that was… Read More


Never heard of NPH? Well, you’re not alone. NPH, or Normal Pressure Hydrocephalus, is not a widely known medical condition and is sometimes identified as “old age problems,” or as Alzheimer’s or Parkinson’s. Yet over 375,000 Americans may be living with the disorder. It’s a condition where cerebrospinal fluid (CSF) – a clear fluid that… Read More


Latex is a natural product made from the milky sap of the rubber tree (Heavea Brasillienus). Its durability, flexibility and low manufacturing costs has made latex a popular material. A latex allergy is a reaction to products made from natural rubber latex. the reactive is proteins originating from the rubber tree and present in products… Read More


As the number one disabling birth defect in Canada, spina bifida affects one out of every 1200 children born. It is classified as a neural tube defect (NTD) and occurs during the first four weeks of pregnancy. Spina bifida is the incomplete development of the nervous system and spinal cord, and results in varying degrees… Read More


It's never too late

Folic acid, also known as folate or folacin, is a B vitamin that is essential for the healthy development of a baby’s spine, brain and skull during the early weeks of pregnancy. Folic acid has been proven to help reduce the risk of neural tube defects (NTDs) by more than 70% if taken before pregnancy.… Read More


pen writing on paper

The SBHAC’s Mission is to improve the quality of life for all individuals with spina bifida and/or hydrocephalus, and their families through public awareness, education, research and advocacy, and to reduce the incidence of neural tube defects. You can help us by becoming a member of SBHAC today. You will receive our SBHAC newsletter, and… Read More