Research Applications – Deadline February 28, 2024 February 1, 2023 | Joey Pothe RESEARCH FUNDING AVAILABLE – SPRING 2024 – Deadline February 28 SBHAC invites applications from researchers who would like to apply for funding for research projects on spina bifida and hydrocephalus. Click on the link to download the application and guidelines. TOGETHER – we can make it happen! The deadline to apply for the Spring intake… Read More
Participate in Research – Adolescents and Youth Bloorview Research Institute Research Study July 18, 2020 | Joey Pothe Bloorview Research Institute Research Study Are you a young person with spina bifida between 10-24 years of age? Would you like to talk about what health and wellness means to you Consider participating in our study! What is this study about: We want to explore what ‘health’ and ‘wellness’ means to young people with spina… Read More
SBHAC is pleased to announce funding for three research projects for 2020-2021 June 9, 2020 | Joey Pothe We thank the SBHAC Research committee and professional reviewers for assisting in the selection of successful applicants/projects. Symptoms of Anxiety and Depression in Pediatric Patients with Spinal Cord Disorders Principal Investigator- Dr. Andrew MacNeily – BC Children’s Hospital, UBC, Vancouver, BC Treatment of Hydrocephalus in Children and Adults: An Analysis of Treatment, Complications and… Read More
External Research Study: Survey on Accessibility in Canada December 3, 2019 | Joey Pothe We are a research team from KITE, the research arm of Toronto Rehab-University Health Network. We want to learn about the main barriers to accessibility that individuals in Canada experience. Who is invited to participate: Individuals who are 18 years old or older, live in Canada, and identify as atleast one of the following: A… Read More
Family and Adult Conference in Winnipeg – Thank You November 20, 2018 | Joey Pothe We want to thank everyone for attending and participating in our family and adult conference in Winnipeg, Manitoba. We hope you had a wonderful time! Thanks to our Major Sponsor, The Winnipeg Foundation. Thanks to our Partner Sponsors, Medtronic and Nestlé Materna. Thanks to our Wine Sponsor, RBC Royal Bank. Thanks… Read More
Research Reports for 2016 September 26, 2016 | Joey Pothe Obesity is a global health concern. Children and youth with disabilities have high rates of obesity, which can affect both their physical health and quality of life. Children with spina bifida are at higher risk of developing overweight or obesity for a number of reasons, but weight management is not often talked about in spina bifida clinics. … Read More
New study on sexuality for adults with spina bifida September 26, 2016 | Joey Pothe If you are 18 or older with spina bifida, we want to hear from you! Researchers at Indiana University are interested in learning about your sexual health and experiences with spina bifida. Participate whether or not you ever had sex. It takes only 15-20 minutes!… Read More
Research Reports For 2015 September 1, 2015 | Chris Leczynski An environmental scan of weight assessment and management practices in paediatric spina bifida clinics across Canada. Dr. McPherson. PDF. Two year project was on reducing complications associated with endoscopic third ventriculostomy through simulation based training. Dr. Haji. PDF.… Read More