RESEARCH FUNDING AVAILABLE- Deadline January 31, 2019 SBHAC invites applications from researchers who would like to apply for funding for research projects on spina bifida and hydrocephalus. Click on the link to download the application and guidelines. TOGETHER – we can make it happen! HAPPY HOLIDAYS! Deadline to apply is January 31, 2019 at 5:00… Read More


We want to thank everyone for attending and participating in our family and adult conference in Winnipeg, Manitoba. We hope you had a wonderful time!   Thanks to our Major Sponsor, The Winnipeg Foundation.     Thanks to our Partner Sponsors, Medtronic and Nestlé Materna.       Thanks to our Wine Sponsor, RBC Royal Bank.     Thanks… Read More


Obesity is a global health concern. Children and youth with disabilities have high rates of obesity, which can affect both their physical health and quality of life. Children with spina bifida are at higher risk of developing overweight or obesity for a number of reasons, but weight management is not often talked about in spina bifida clinics. … Read More


If you are 18 or older with spina bifida, we want to hear from you! Researchers at Indiana University are interested in learning about your sexual health and experiences with spina bifida. Participate whether or not you ever had sex. It takes only 15-20 minutes!… Read More


An environmental scan of weight assessment and management practices in paediatric spina bifida clinics across Canada. Dr. McPherson. PDF. Two year project was on reducing complications associated with endoscopic third ventriculostomy through simulation based training. Dr. Haji. PDF.… Read More