Annual Reports

Our 2019 – 2020 Annual Report has been posted here.… Read More

Notice for Annual General Meeting 2020 (change of date)

Notice is hereby given that the Annual General Meeting (AGM) of the Spina Bifida & Hydrocephalus Association of Canada will be held, November 25, 2020.… Read More

Participate in Research – Adolescents and Youth Bloorview Research Institute Research Study

Bloorview Research Institute Research Study Are you a young person with spina bifida between 10-24 years of age? Would you like to talk about what health and wellness means to you Consider participating in our study! What is this study about: We want to explore what ‘health’ and ‘wellness’ means to young people with spina… Read More


SBHAC is pleased to announce funding for three research projects for 2020-2021

We thank the SBHAC Research committee and  professional reviewers for assisting in the selection of successful applicants/projects.    Symptoms of Anxiety and Depression in Pediatric Patients with Spinal Cord Disorders Principal Investigator- Dr. Andrew MacNeily – BC Children’s Hospital, UBC, Vancouver, BC Treatment of Hydrocephalus in Children and Adults: An Analysis of Treatment, Complications and… Read More

Older news…

Since its inception in 1981, we have been working on behalf of people with spina bifida and/or hydrocephalus and their families.

Spina Bifida & Hydrocephalus Canada is a federation of 13 organizations working collectively on behalf of people with Spina Bifida and/or Hydrocephalus.

Our volunteer national board of directors is comprised of representatives from member associations across the country.

Please contact us if you would like more information.