October 25, 2017 ACCESS TO HEALTHCARE FOR ALL! #WSBHD Today is the 6th World Spina Bifida and Hydrocephalus Day! There are at least 1.5 million people globally living with neural tube defects.  People with spina bifida and hydrocephalus need timely and affordable access to appropriate, specialized and multidisciplinary care throughout their lifespan.  Let’s celebrate WSBHD… Read More


On World Mental Health Day, October 10, the International Federation for Spina Bifida and Hydrocephalus (IF) called for integrated care for people with complex disabilities. Today, IF joins the celebration of World Mental Health Day by launching our animation “Reclaiming my health”, on the importance of mental health and well-being of people living with complex… Read More


A big THANK YOU to UNIFOR for hosting another successful tournament in support of the Spina Bifida and Hydrocephalus Association of Canada. The  4th Charity Golf Classic in support of SBHAC was held on June 2, 2017 in Milton, ON. Thanks to the support of all the UNIFOR staff, members, volunteers and sponsors the tournament raised… Read More


Effective February 1, 2017, the Spina Bifida and Hydrocephalus Association of Canada will be moving to our new office space.… Read More


Virtual Tree Campaign

Virtual Tree Campaign launch – November 15, 2016 In the spirit of the holiday season, we ask for your support by placing a Star, Gift  or Light on our virtual tree! Your donation helps us continue to do good work in  communities across Canada. While the main focus of the national office is on  education… Read More


Obesity is a global health concern. Children and youth with disabilities have high rates of obesity, which can affect both their physical health and quality of life. Children with spina bifida are at higher risk of developing overweight or obesity for a number of reasons, but weight management is not often talked about in spina bifida clinics. … Read More


If you are 18 or older with spina bifida, we want to hear from you! Researchers at Indiana University are interested in learning about your sexual health and experiences with spina bifida. Participate whether or not you ever had sex. It takes only 15-20 minutes!… Read More