External Research Study: Survey on Accessibility in Canada December 3, 2019 | Joey Pothe We are a research team from KITE, the research arm of Toronto Rehab-University Health Network. We want to learn about the main barriers to accessibility that individuals in Canada experience. Who is invited to participate: Individuals who are 18 years old or older, live in Canada, and identify as atleast one of the following: A… Read More
SBHAC Financial Statements as at April 2019 September 30, 2019 | Joey Pothe SBHAC Financial-Statements as at April 2019 (PDF). Previous SBHAC Financial Statements as at April 2018 (PDF) SBHAC Financial Statements as at April 2017 (PDF) SBHAC Financial Statements as at April 2016 (PDF)… Read More
June is Spina Bifida Awareness Month June 1, 2019 | Joey Pothe June is National Spina Bifida Awareness Month. Spina bifida is the #1 physically disabling birth defect in newborns. Please read more and consider making a difference. Donate today!… Read More
6th Annual Bud Spud & Steak a Big Success April 30, 2019 | Joey Pothe Supporters of the Spina Bifida and Hydrocephalus Association of Canada came out in record numbers to the 6th Annual SBHAC Bud, Spud and Steak Fundraiser on April 18, 2019, at the Belgian Club/Royal Canadian Legion 107 in Winnipeg. We raised $16,265.00 through event tickets sales, donations, as well as silent auction, 50/50, grand prize and… Read More
Family and Adult Conference in Winnipeg – Thank You November 20, 2018 | Joey Pothe We want to thank everyone for attending and participating in our family and adult conference in Winnipeg, Manitoba. We hope you had a wonderful time! Thanks to our Major Sponsor, The Winnipeg Foundation. Thanks to our Partner Sponsors, Medtronic and Nestlé Materna. Thanks to our Wine Sponsor, RBC Royal Bank. Thanks… Read More
5th Annual SBHAC Golf Classic 2018 – Thank you! September 18, 2018 | Joey Pothe Clear skies and cool weather greeted enthusiastic golfers who joined us on September 15th for our 5th Annual SBHAC Golf Classic. Many Thanks to everyone who came out to support SBHAC, and the volunteers who helped make the event a success. The round of golf was followed up with a delicious chicken and ribs dinner… Read More
Manitoba Liquor Marts Coin Box Program June 1, 2018 | Joey Pothe The Spina Bifida & Hydrocephalus Association of Canada was chosen for the 2018 Coin box program with Manitoba Liquor & Lotteries – Liquor Marts. Your donation will help us in our mission to educate young women on the importance of taking a multivitamin that contains folic acid before becoming pregnant to prevent neural tube defects… Read More
A Canadian first, doctors performed in-utero surgery on baby with spina bifida November 16, 2017 | Joey Pothe In a Canadian first, doctors performed in-utero surgery on baby with spina bifida.… Read More
World Spina Bifida and Hydrocephalus Day October 25, 2017 | Joey Pothe October 25, 2017 ACCESS TO HEALTHCARE FOR ALL! #WSBHD Today is the 6th World Spina Bifida and Hydrocephalus Day! There are at least 1.5 million people globally living with neural tube defects. People with spina bifida and hydrocephalus need timely and affordable access to appropriate, specialized and multidisciplinary care throughout their lifespan. Let’s celebrate WSBHD… Read More
Reclaiming my health October 13, 2017 | Joey Pothe On World Mental Health Day, October 10, the International Federation for Spina Bifida and Hydrocephalus (IF) called for integrated care for people with complex disabilities. Today, IF joins the celebration of World Mental Health Day by launching our animation “Reclaiming my health”, on the importance of mental health and well-being of people living with complex… Read More