2023-2024 NATIONAL RESEARCH GRANTS Principal Investigator – Dr. Thomas de los ReyesEngaging Youth with Spina Bifida in Articulating Health Priorities through Photovoice 2022-2023 NATIONAL RESEARCH GRANTS Principal Investigator – Dr. Soojin KimParental Role on Transition Readiness Among Adolescents with Spina Bifida 2021-2022 NATIONAL RESEARCH GRANTS Principal Investigator – Dr. Amy McPhersonExploring the extent and nature of disordered eating in adolescents and young adults with Spina Bifida and Hydrocephalus across Canada (Year 2) 2020-2021 NATIONAL RESEARCH GRANTS Principal Investigator – Dr. Andrew MacNeilySymptoms of Anxiety and Depression in Pediatric Patients with Spinal Cord Disorders Principal Investigator – Dr. Mark HamiltonTreatment of Hydrocephalus in Children and Adults: An Analysis of Treatment, Complications and Costs in Canada using Hospital Data from the Canadian Institute Health Information (2000-2018) Principal Investigator – Dr. Amy McPhersonExploring the extent and nature of disordered eating in adolescents and young adults with Spina Bifida and Hydrocephalus across Canada 2019-2020 NATIONAL RESEARCH GRANTS No grants awarded 2018-2019 NATIONAL RESEARCH GRANTS No grants awarded 2017-2018 NATIONAL RESEARCH GRANTS Principal Investigator – Dr. Adrienne DavisSonographic Change in Optic Nerve Sheath Diameter and Optic Disc Elevation as Predictors of Ventriculoperitoneal Shunt Obstruction in Children 2016-2017 NATIONAL RESEARCH GRANTS Principal Investigator – Dr. Nathalie AugerMaternal Early Life Risk Factors for Neural Tube Defects in Quebec 2015-2016 NATIONAL RESEARCH GRANTS No grants awarded 2014-2015 NATIONAL RESEARCH GRANTS Principal Investigator – Dr. Kristin E. MusselmanPast and Current Use of Walking Measures for Children With Spina Bifida: A Systematic Review Principal Investigator – Dr. D Douglas CochraneThe natural history and management of patients with congenital deficits associated with lumbosacral lipomas Principal Investigator – Dr. Amy McPhersonDeveloping a Clinical Teaching Simulation for Healthcare Professionals communicating about weight-related topics in Spina Bifida Clinics (Year 2) 2013-2014 NATIONAL RESEARCH GRANTS Principal Investigator – Dr. Faizal HajiReducing complications associated with Endoscopic Third Ventriculostomy through simulation-based training; a prospective randomized study (Year 2) Principal Investigator – Dr. Amy McPherson Developing a Clinical Teaching Simulation for Healthcare Professionals communicating about weight-related topics inSpina Bifida Clinics 2012-2013 NATIONAL RESEARCH GRANTS Principal Investigator – Dr. Amy McPhersonAn environmental scan of weight assessment and management practices in pediatric Spina Bifida clinics across Canada Principal Investigator – Dr. Faizal HajiReducing complications associated with Endoscopic Third Ventriculostomy through simulation-based training; a prospective randomized study Research Reports for 2013-2014 How should we talk about weight-related issues in spina bifida consultations? PDFSimulation based training for endoscopic third ventriculostomy. PDF Research Grants Awards 1987-2005 2005 Risk of Neural Tube Defects in Association with Elevated C-Reactive Protein – Dr. J. Ray Go to top2004 Maternal Diabetes Mellitus and the Risk of Neural Tube Defects; Maternal Ethnicity and the Risk of Neural Tube Defects Go to top 2002-2005 “Developmental Issues Related to Cerebrospinal Fluid Transport and the Importance of the Extracranial Lymphatic System” This award has been granted for 3 years. This award is offered in partnership with SBHAC based on a 1:1 funding ratio with the Canadian Institutes of Health Research (CIHR). Go to top 2001 Eye Movement Abnormalities and Cerebellar Dysmorphology in Children with Spina Bifida and Hydrocephalus Go to top 2000 A Mechanical Investigation into the causes of Spina Bifida The Effects of Physical Activity and Bisphosphonate Supplementation on the Prevention and Reduction of “Secondary” Handicaps in Children with Spina Bifida Go to top 1999 Developmental changes in CSF clearance mechanisms; relevance to pediatric hydrocephalus. “Self-Esteem and Social Support: Strengthening the Social Relationships of Young People with Spina Bifida” Go to top 1998 No grants awarded Go to top1997 Identification of the Primary Lesion of the Spina Bifida and attempt to induce axonal growth using Polymer Matrix. Neural Tube Defects and Homocysteine Metabolism. Go to top 1996 Renal Risk Project. Mesenchymal-Epithelial Transformation in Secondary Neurulation. Surgical Correction of Congenital Kyphosis and the Effects of Cordotomy on Bowel and Bladder Function in Myelomingocele. Toward Improved Diagnosis of Visual Learning Problems in Children with Hydrocephalus. Go to top 1995 Mesenchymal-Epithelial Transformation in Secondary Neurulation. Timing Functions of the Cerebellum: Their Role in Motor & Language Skills with Children with Hydrocephalus. The Ventriculoperitoneal Shunt Design Trial. Sleep Disordered Breathing in Children with Myelomeningocele. Go to top 1994 Expression Analysis of Vertebrate E (spl) Gene Homologues. Neural Tube Defects in the B.C. Sikh Population. Sleep Disordered Breathing in Children with Myelomeningocele. Conversational Patterns in Children with Myelomeningocele & Hydrocephalus. Development of the Father-Infant Relationship with an Infant who has Spina Bifida. Go to top 1993 Does Amniotic Fluid Damage the Fetal Spinal Cord? Molecular Genetic Basis for Spina Bifida. Measuring Functional Outcome of Spine Surgery in Children with Spina Bifida. Go to top 1992 Morbidity and Mortality in Hydrocephalic Children Associated with Cerebrospinal Fluid Shunt Valves: Slit & Core or Ball & Spring. Differentiation Waves During Formation of the Nervous System. Assessment of Methods for Rapid Diagnosis of Urinary Tract Infections in Children with Meningomyelocele. Molecular Genetics Basis for Spina Bifida. Support and Burden of Mothers of Children with Spina Bifida. Go to top 1991 Comparison of Normal and Abnormal Neural Tube Closure. Mechanical Properties of Developing Neural Plate. Glucose Utilization in Neonatal Hydrocephalus. The Use of Stomach in Creating a Urinary Sphincter. Go to top 1990 Mineral Analysis of Anencephalic Tissue and Control Tissue. The Effects of: (i) Experimentally Induced Hydrocephalus on the Cerebral Cortex and (ii) Vasopressin on Brain Water Content and Intracranial Pressure. Rotating Microscope for Observing Neurulation. Comparison of Bacterieurea in Subjects using Intermittent Catheterization: Sterile Catheters Versus Clean Reused Catheters. Gastric Muscularis as Physiological Urinary Sphincter. Go to top 1989 The Effects of: (I) Experimentally induced Hydrocephalus on the Cerebral Cortex and (ii) Vasopressin on Brain Water Content and Intracranial Pressure. (2nd year of 3 year project) Early Brain Development. (3rd year) Chronic in vivo Evaluation of CSF Shunt Function in a Hydrophalic Model. Investigation of the Symplahtetic Nervous System in Myelodysplasia and its Relation to Vesico-Urethral Dysfunction. Identification of Genes Selectively Expressed in the Neuroectoderm of Amphibians During Neurulation. Go to top 1988 The Effects of: (I) Experimentally induced Hydrocephalus on the Cerebral Cortex and (ii) Vasopressin on Brain Water Content and Intracranial Pressure. (1st year of 3 year project) Development of the Neural Tube. (2nd year) Study of the Surgical Release of Tethered Cords. Myelomeningocele Clinic Data Collection. Go to top 1987 Mechanics of Early Neurulation. (1st year) To Assess the Long Term Neurological, Orthopaedic and Urological Consequences of the Surgical Release of Tethered Cords in Myelomeningocele Children. Go to top